Not a lot of new info...it's the waiting game again. However, I did meet with my radiation oncologist to discuss radiation to this new area of pain in my ribs. Because I am back on pain meds, it is hard to decipher where the pain is actually coming from. Therefore, he recommends a bonescan before proceeding with more radiation. I have an appt for the scan on the friday after Thanksgiving. Also, he was not worried at all about the potential mark they saw on my lung either...phew! He showed me the xrays and I was barely able to see it. When he zoomed in at a different angle, it had disappeared completely. I was very relieved. I also got my bone infusion last week to help strengthen the bones and hopefully shrink the lesions more. I was glad to get that taken care of.
So, other than that I've been laying pretty low, hanging with friends a bit, but mostly reading, meditating and resting.
I feel very compelled to go on a spiritual getaway, so my mom and I are planning a trip to Sedona, AZ on her winter break. And I am also researching and planning a trip to Cusco, Peru in early April.
I feel an enormous sense of freedom already just by planning these trips. It allows me to escape from the endless chatter going on in my head and focus on exciting adventures for my soul. Interesting that this is what my horoscope said today...
"A rested mind gives us the ability to remain calm during uncertain circumstances and provides the clarity and insight to make wiser decisions. While feelings of anxiety are often caused by fear, we can make matters worse by obsessing over our anxious thoughts, creating an ongoing cycle of tension. By choosing instead to release our fearful thoughts and give our minds a rest, we free ourselves from the bonds of fear and empower ourselves with clear thinking processes that can help us devise solutions to problems and make more lucid decisions. Choosing to focus on the peaceful stillness within you today can neutralize your anxiety and restore a sense of balance again."
God sure has impeccable timing! :)
Wishing everyone a very safe and Happy Thanksgiving! Be sure to share what you are thankful for! Gratitude will always create the pathway to many more blessings!
Lots of love and light,
Trysh
Thursday, November 19, 2009
Wednesday, November 4, 2009
Trycia's Angels - Community Announcements
Long Day
posted by Trycia Perry, Wednesday, November 4, 2009, 10:15 PM
So after a long and exhausting day driving from San Clemente to LA for my oncologist appt, here is the latest news...the good news first! The lesion they 'thought' they saw on my lung was an 'unspecific 1-2 mm spot, not necessarily even cancer' My oncologist is NOT worried, but we will keep an eye on it in just in case for the next several months. She said it is so small that it wouldn't even show up on a petscan. Upon hearing this, I lost it. I was beyond relieved and sooo needed this good news today!
The other news is that my recent radiation has dropped my white blood cell count down significantly, so I am feeling very weak, rundown and suseptible to colds, the flu, and other infections. This may last up to a month. However, I was given "neupogen injections" which will boost the WBC's back up. I had one today, and I am feeling a little better already.
As far as radiation to the rib area, we will evaluate this next week. In the meantime, I am back on fentenyl for awhile to mask the pain so I can function like a normal human being.
I will be going back on my chemo pill as soon as my immune system is strong enough to handle it and will also be getting Aridea (2 hour bone infusions) once a month to strengthen my bones, decrease pain and hopefully further shrink the remaining tumor growth.
Lotta information to absorb, and I am overwhelmed to say the least, but I am grateful that I have these options. She also said my diet is great and to keep it up!
I saw at least 10 hawks on our drive today, and if you know me, you know how much I adore these creatures. They have been around me for months now. I found out that they represent "a higher purpose" which makes sense to what I have been going through. i just wish I knew what this "higher purpose" was because frankly, I am sick and tired of ALL OF IT! Is that bad? Whatevs...I feel justified in saying this today. HA!
Anyways, my birthday is on sunday and I will use this as a goal to gain back some strength so I can party like a rockstar! If I have to be on all these stupid drugs, they can get me through ONE festive evening of karaoke fun.
So, that's it for now...thank you for the prayers and well wishes! I'm a little upset with God right now, so I'm grateful He responded to all of your prayers! haha :) I'll get back on track soon...I promise. Lots of love to all! Trysh
posted by Trycia Perry, Wednesday, November 4, 2009, 10:15 PM
So after a long and exhausting day driving from San Clemente to LA for my oncologist appt, here is the latest news...the good news first! The lesion they 'thought' they saw on my lung was an 'unspecific 1-2 mm spot, not necessarily even cancer' My oncologist is NOT worried, but we will keep an eye on it in just in case for the next several months. She said it is so small that it wouldn't even show up on a petscan. Upon hearing this, I lost it. I was beyond relieved and sooo needed this good news today!
The other news is that my recent radiation has dropped my white blood cell count down significantly, so I am feeling very weak, rundown and suseptible to colds, the flu, and other infections. This may last up to a month. However, I was given "neupogen injections" which will boost the WBC's back up. I had one today, and I am feeling a little better already.
As far as radiation to the rib area, we will evaluate this next week. In the meantime, I am back on fentenyl for awhile to mask the pain so I can function like a normal human being.
I will be going back on my chemo pill as soon as my immune system is strong enough to handle it and will also be getting Aridea (2 hour bone infusions) once a month to strengthen my bones, decrease pain and hopefully further shrink the remaining tumor growth.
Lotta information to absorb, and I am overwhelmed to say the least, but I am grateful that I have these options. She also said my diet is great and to keep it up!
I saw at least 10 hawks on our drive today, and if you know me, you know how much I adore these creatures. They have been around me for months now. I found out that they represent "a higher purpose" which makes sense to what I have been going through. i just wish I knew what this "higher purpose" was because frankly, I am sick and tired of ALL OF IT! Is that bad? Whatevs...I feel justified in saying this today. HA!
Anyways, my birthday is on sunday and I will use this as a goal to gain back some strength so I can party like a rockstar! If I have to be on all these stupid drugs, they can get me through ONE festive evening of karaoke fun.
So, that's it for now...thank you for the prayers and well wishes! I'm a little upset with God right now, so I'm grateful He responded to all of your prayers! haha :) I'll get back on track soon...I promise. Lots of love to all! Trysh
Trycia's Angels - Community Announcements
ER update
posted by Trycia Perry, Monday, November 2, 2009, 5:45 PM
Hello again, I did end up going to the ER today. After some bloodwork and a CT scan, they did find more cancer in the upper right ribs. More scans need to be done, but there also may be a small lesion on the lung. I meet with my oncologist wednesday to discuss my all my options and run more tests. The good thing is I DO have options. Most likely we can do more radiation, but at this point it may be time for me to go back on my chemo pill as well. (the one where I wouldn't lose my hair) Good God I just don't understand why this is happening but somehow I'm always able to handle it. I plan on moving forward with life as usual and enjoyment regardless of this new development. Thank u for all the support as always... Love u guys... T
posted by Trycia Perry, Monday, November 2, 2009, 5:45 PM
Hello again, I did end up going to the ER today. After some bloodwork and a CT scan, they did find more cancer in the upper right ribs. More scans need to be done, but there also may be a small lesion on the lung. I meet with my oncologist wednesday to discuss my all my options and run more tests. The good thing is I DO have options. Most likely we can do more radiation, but at this point it may be time for me to go back on my chemo pill as well. (the one where I wouldn't lose my hair) Good God I just don't understand why this is happening but somehow I'm always able to handle it. I plan on moving forward with life as usual and enjoyment regardless of this new development. Thank u for all the support as always... Love u guys... T
Trycia's Angels - Community Announcements
radiation update
posted by Trycia Perry, Tuesday, October 20, 2009, 11:00 AM
I had an appt with my radiation doc yesterday to discuss my bloodwork and decide if my immune system is strong enough to handle more radiation. It was, of course. :) He gave me the option of radiating each hip separately, or together. I chose to do both together to get it done sooner, which may be a little tougher on my body. I'm sure I can handle it...I'm a strong girl. Today, we will prep the area (both hips and femurs) and then 5 days of radiation will be scheduled. (most likely starting next week) My goal today is to increase my green drinks, resume my supplements, meditate, continue with pt and swimming, but get plenty of rest also. Please keep me in your prayers that I may have the strength and resilience to get through this next step. Thank you, and I promise to be better with the updates ;)
Just got home following a 2 hour, semi-torturous radiation prep in Garden Grove. Its all good...it was just very long and I was in some pain laying on a hard table for so long. Anyways, the next round of radiation (5 days total) will begin on monday 10/26/09 thru friday at 2PM each day. I have been driving myself to most of my appts lately, but I may need help with rides next week if the radiation leaves me overly fatigued. I will update the calender section if I end up needing rides. Hungry...so gonna eat dinner now :)
radiation complete
posted by Trycia Perry, Sunday, November 1, 2009, 12:30 PM
I'm happy to report that I finished my last bout of radiation in my hips and femurs this past friday. I was able to drive myself to and from each appt with no problems and very little fatigue. However, these past several weeks I have been weening myself off of fentenyl. (the opiate that is 100 times stronger than morphine) So, lately I have been feeling more pain than usual. I also have been feeling some new, strong pain in my upper right back area. I've tried to ignore it, thinking it would go away, but it hasn't. My oncologist always tells me that if I ever feel any "new pain," I should go to the ER. I am sitting on my parents sundeck, reading "eat pray love," contemplating what I want to do. I'm very emotional right now because I feel like I just can't get a handle on this bullshit. I'm over ONE hump and start trying to plan my life again and then WHAM another potential setback. If I do go to the ER it will most likely be tomorrow. For now, I am once again asking for your prayers that the pain is just a pulled muscle or some other minor thing. Even if if IS cancer, I pray that it is only in the bone (not the lung) can be treated with radiation and I could get back to my life again. All I want is to be able to move forward. Any advice and prayers are welcomed at this time. LoveLoveLove, Trysh
posted by Trycia Perry, Tuesday, October 20, 2009, 11:00 AM
I had an appt with my radiation doc yesterday to discuss my bloodwork and decide if my immune system is strong enough to handle more radiation. It was, of course. :) He gave me the option of radiating each hip separately, or together. I chose to do both together to get it done sooner, which may be a little tougher on my body. I'm sure I can handle it...I'm a strong girl. Today, we will prep the area (both hips and femurs) and then 5 days of radiation will be scheduled. (most likely starting next week) My goal today is to increase my green drinks, resume my supplements, meditate, continue with pt and swimming, but get plenty of rest also. Please keep me in your prayers that I may have the strength and resilience to get through this next step. Thank you, and I promise to be better with the updates ;)
Just got home following a 2 hour, semi-torturous radiation prep in Garden Grove. Its all good...it was just very long and I was in some pain laying on a hard table for so long. Anyways, the next round of radiation (5 days total) will begin on monday 10/26/09 thru friday at 2PM each day. I have been driving myself to most of my appts lately, but I may need help with rides next week if the radiation leaves me overly fatigued. I will update the calender section if I end up needing rides. Hungry...so gonna eat dinner now :)
radiation complete
posted by Trycia Perry, Sunday, November 1, 2009, 12:30 PM
I'm happy to report that I finished my last bout of radiation in my hips and femurs this past friday. I was able to drive myself to and from each appt with no problems and very little fatigue. However, these past several weeks I have been weening myself off of fentenyl. (the opiate that is 100 times stronger than morphine) So, lately I have been feeling more pain than usual. I also have been feeling some new, strong pain in my upper right back area. I've tried to ignore it, thinking it would go away, but it hasn't. My oncologist always tells me that if I ever feel any "new pain," I should go to the ER. I am sitting on my parents sundeck, reading "eat pray love," contemplating what I want to do. I'm very emotional right now because I feel like I just can't get a handle on this bullshit. I'm over ONE hump and start trying to plan my life again and then WHAM another potential setback. If I do go to the ER it will most likely be tomorrow. For now, I am once again asking for your prayers that the pain is just a pulled muscle or some other minor thing. Even if if IS cancer, I pray that it is only in the bone (not the lung) can be treated with radiation and I could get back to my life again. All I want is to be able to move forward. Any advice and prayers are welcomed at this time. LoveLoveLove, Trysh
Trycia's Angels - Community Announcements
hello!
posted by Trycia Perry, Sunday, October 18, 2009, 3:08 PM
Just a quick update to let you know that I am progressing very well! I am now walking with one crutch, driving, swimming, doing physical therapy and even visiting and hanging with friends! Its been a very rough recovery process...probably the worst of my life, but the docs are optimistic and I am optimistic, so there ya go! Cancer aint got nothin on me!! :)
I did have one major dose of radiation on my upper spine, 5 doses on my lower spine, and I meet with the doc on monday to see if I will do radiation on the hips. I have been weening off my narcotics very slowly. I made a terrible mistake of going cold turkey at one point, and went through horrendous withdrawls. It was terrifying! Don't EVER try that with Fentenyl!
Anyways, I am sooo happy to be recovering so well. I have such wonderful family and friends pushing me along every day. I'm a very lucky and grateful girl! Until next time....love and blessings! Trycia
posted by Trycia Perry, Sunday, October 18, 2009, 3:08 PM
Just a quick update to let you know that I am progressing very well! I am now walking with one crutch, driving, swimming, doing physical therapy and even visiting and hanging with friends! Its been a very rough recovery process...probably the worst of my life, but the docs are optimistic and I am optimistic, so there ya go! Cancer aint got nothin on me!! :)
I did have one major dose of radiation on my upper spine, 5 doses on my lower spine, and I meet with the doc on monday to see if I will do radiation on the hips. I have been weening off my narcotics very slowly. I made a terrible mistake of going cold turkey at one point, and went through horrendous withdrawls. It was terrifying! Don't EVER try that with Fentenyl!
Anyways, I am sooo happy to be recovering so well. I have such wonderful family and friends pushing me along every day. I'm a very lucky and grateful girl! Until next time....love and blessings! Trycia
Trycia's Angels - Community Announcements
heading home!
posted by Trycia Perry, Friday, August 28, 2009, 1:43 PM
hey everyone, I am heading home today to my parents house in san clemente! yay! It took awhile for the pain management team to figure out a pain med combination that would work for me to take home. The PT team has been working with me every day and feels I am more than ready to go as well. I'm excited but I am a bit nervous as well. I can walk slowly with a walker, but I still struggle on other daily activities. My awesome parents will be there to help me but my mom is already back at work and she is gonna have her hands full. eventually I will be adding to my calender for more helping hands if anyone has time during these next few months. thank u as always for your encouragement....let the healing begin! Love you guys! Trysh
posted by Trycia Perry, Friday, August 28, 2009, 1:43 PM
hey everyone, I am heading home today to my parents house in san clemente! yay! It took awhile for the pain management team to figure out a pain med combination that would work for me to take home. The PT team has been working with me every day and feels I am more than ready to go as well. I'm excited but I am a bit nervous as well. I can walk slowly with a walker, but I still struggle on other daily activities. My awesome parents will be there to help me but my mom is already back at work and she is gonna have her hands full. eventually I will be adding to my calender for more helping hands if anyone has time during these next few months. thank u as always for your encouragement....let the healing begin! Love you guys! Trysh
Trycia's Angels - Community Announcements
"posted by Trycia Perry, Tuesday, August 25, 2009, 1:44 AM
hi friends and family. I apologize for taking so long to get this out. I have been pretty drugged up this entire time and it is only today that I am able to tolerate a little more pain and be able to focus on anything. This has been a very overwhelming and difficult process for me. I have to say that my first surgery and hospital experience at Kaiser Sunset was a completely different and more pleasant an experience than here. The surgery part went well. They successfully placed a metal rod in each femur bone and repaired my left pelvic bone, removed majority of lesions, cemented and repaired bone. But.... My God! My body has been through some pretty bad torture! Immediately following surgery, while I was still in the recovery room and my pain hadn't been properly managed, I was forced to do numerous X-rays! They manipulated metal boards under my body, bent and twisted my legs to get proper pictures, turned me on my sides where the metal rods were placed and slid the boards underneath,etc. for about an hour. The pain was unbearable. I'm very surprised I didn't pass out. When my parents and Mike came in to see me, the color was drained from my face and I was shaking and crying uncontrollably. At that point I needed a second blood transfusion. ( I recvd one during surgery) After this, I finally made it up to my room and the pain was still not quite under control. Needless to say, I didn't sleep too well that night. The next day I was still pretty shaken up and was terrified of any physical therapy. I had made up my mind that I would refuse to get up. Although scheduled, the physical therapist didn't show up! Thank the Lord! Also, I'd been battling a fever on and off. Next day, the pain was better managed and fever had reduced. Physical therapist DID show up today and I was able to slither out of bed, touch my feet to the ground and stand up with the walker and extra help from the therapist. I was extremely dizzy and in lots of pain. It felt very wierd to put weight on my left foot especially because it is partially numb and tingly. Dr said this is normal and should last maybe a couple weeks. (I do feel it getting better every day) Because the Dr. had to cut into the muscle in the leg, it disturbed the nerve in the foot. Anyways, I managed to take 6 steps forward and 6 steps back. DONE. Back in bed. Needed pain meds and had a nurse for the last 2 days who was horribly lazy, uncompassionate, and not much help at all. Battled a fever again that night. Next day, docs said I needed another (6 hr) blood transfusion. Same nurse assigned that day. She had to replace both my iv lines. one for the meds, another for blood. Took her about 4 tries, lots of pain, frustration, tears, and I was done! My friend Scott showed up unexpectedly, but just in the nick of time and I lost it. Long story short, Scott gave me the courage to speak up and request another nurse. I told them everything and then some about how I was treated by her and officially reported her. It felt good. Today was a lot better. Blood transfusion helped, new wonderful nurse, 2 pt sessions. some irritating things happened, but managed to get through it. I feel like my body is just tore up! Cuts, bruises, scabs, sores, dry mouth, itchiness, constipation....BUG! Tomorrow is a new day however and I am already feeling optimistic. As you can probably imagine, it hasn't been an ideal time for visitors. I most likely will be here another couple days but I still have a lot of work to do, and sleep to catch up on. It would be best to come and visit me at my parents house where I am in a relaxed, healing environment, and will be recovering for several months. I will update if I end up staying here longer than expected. Thank you as always for your prayers!! I've been given incredible strength through the 6race of God, the power of YOUR prayers, healing thoughts and energy. God Bless all of you!!
hi friends and family. I apologize for taking so long to get this out. I have been pretty drugged up this entire time and it is only today that I am able to tolerate a little more pain and be able to focus on anything. This has been a very overwhelming and difficult process for me. I have to say that my first surgery and hospital experience at Kaiser Sunset was a completely different and more pleasant an experience than here. The surgery part went well. They successfully placed a metal rod in each femur bone and repaired my left pelvic bone, removed majority of lesions, cemented and repaired bone. But.... My God! My body has been through some pretty bad torture! Immediately following surgery, while I was still in the recovery room and my pain hadn't been properly managed, I was forced to do numerous X-rays! They manipulated metal boards under my body, bent and twisted my legs to get proper pictures, turned me on my sides where the metal rods were placed and slid the boards underneath,etc. for about an hour. The pain was unbearable. I'm very surprised I didn't pass out. When my parents and Mike came in to see me, the color was drained from my face and I was shaking and crying uncontrollably. At that point I needed a second blood transfusion. ( I recvd one during surgery) After this, I finally made it up to my room and the pain was still not quite under control. Needless to say, I didn't sleep too well that night. The next day I was still pretty shaken up and was terrified of any physical therapy. I had made up my mind that I would refuse to get up. Although scheduled, the physical therapist didn't show up! Thank the Lord! Also, I'd been battling a fever on and off. Next day, the pain was better managed and fever had reduced. Physical therapist DID show up today and I was able to slither out of bed, touch my feet to the ground and stand up with the walker and extra help from the therapist. I was extremely dizzy and in lots of pain. It felt very wierd to put weight on my left foot especially because it is partially numb and tingly. Dr said this is normal and should last maybe a couple weeks. (I do feel it getting better every day) Because the Dr. had to cut into the muscle in the leg, it disturbed the nerve in the foot. Anyways, I managed to take 6 steps forward and 6 steps back. DONE. Back in bed. Needed pain meds and had a nurse for the last 2 days who was horribly lazy, uncompassionate, and not much help at all. Battled a fever again that night. Next day, docs said I needed another (6 hr) blood transfusion. Same nurse assigned that day. She had to replace both my iv lines. one for the meds, another for blood. Took her about 4 tries, lots of pain, frustration, tears, and I was done! My friend Scott showed up unexpectedly, but just in the nick of time and I lost it. Long story short, Scott gave me the courage to speak up and request another nurse. I told them everything and then some about how I was treated by her and officially reported her. It felt good. Today was a lot better. Blood transfusion helped, new wonderful nurse, 2 pt sessions. some irritating things happened, but managed to get through it. I feel like my body is just tore up! Cuts, bruises, scabs, sores, dry mouth, itchiness, constipation....BUG! Tomorrow is a new day however and I am already feeling optimistic. As you can probably imagine, it hasn't been an ideal time for visitors. I most likely will be here another couple days but I still have a lot of work to do, and sleep to catch up on. It would be best to come and visit me at my parents house where I am in a relaxed, healing environment, and will be recovering for several months. I will update if I end up staying here longer than expected. Thank you as always for your prayers!! I've been given incredible strength through the 6race of God, the power of YOUR prayers, healing thoughts and energy. God Bless all of you!!
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